I’m part of the movement to end brain tumours and I hope you’ll support me and my team in this Canada-wide effort to put a stop to this disease.
In 2016, Miranda tried really hard to make the Forest Glade Falcons Novice Softball Team. Softball is her passion and one of the best days of her life was when we looked up the website and read her name on the roster list. She was ecstatic! She loved the game, her teammates, all her coaches, EVERYTHING!!! After a few weeks into the season, a couple tournaments, her catching and hitting started to weaken and she was getting hit at bat! She was also getting hit with balls in gym class at school. So we made an optomotrist appt, we thought she needed glasses. She was a healthy, active 12 yr old. The optomitrist did a lot of tests and he found pressure behind her eyes. He made a referral to our family doctor to refer a neurologist. Our family doctor made the referral but also sent Miranda for a CT scan that led to an immediate MRI to being admitted in emergency where we found out Miranda has a brain tumour located behind her eyes.
On June 24, 2016, Miranda was rushed by ambulance from Windsor to London Children's Hospital where she was diagnosed with a Brain Tumour behind her eyes which has caused the loss of her periheral vision, nystagmus(jumpy eye) and some other vision issues. It is also pressing against her Pituitary Gland causing problems and she has Hydrocephalus (fluid on the brain). She had brain surgery a few days later to place a shunt and have a biopsy done. The surgery lasted longer than expected but was successful! We spent almost 2 wks living at the Ronald McDonald House. After 6 long weeks we were so relieved to find out her tumour is beneign. She has a Pilocytic Astrocytoma. Unfortunately, the tumour is inoperable due to its location. Her optic nerves are embedded in it. After resting and healing all summer, an IV Port surgery was performed that didn't heal well. She was then to receive Chemotherapy of 70 weekly treatments to stop the tumour from growing. After completing 24 weekly treatments, we got the disappointing news that they needed to change the chemo regimen to a different combination of 2 stronger chemos and we have to start over for another 60+weeks.
It has been a long, tiring, sad, disappointing, painful and scary road so far. No child should ever suffer! We are very lucky and grateful to have such wonderful family and friends to help us along the way, support us and hold us up! We couldn't get through this without them!
Miranda has decided to help raise awareness and funds for The Brain Tumour Foundation of Canada to help others like herself who are suffering from this horrible life-threatening illness. And so that children can continue to do the things that they love. And she hopes that one day she will be back on those diamonds playing with her Falcons Softball Family again!
Please support "Team Miranda" on Saturday June 10 by walking with her and showing your support and/or collecting pledges. Thank you.
YOU GOT THIS MIRANDA!!! ... "DON'T STOP BELIEVIN'"!!!
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